Dad dot info
Free online course for separated parents
Forum - Ask questions. Get answers.
Free online course for separated parents
DAD.info | Fatherhood | Latest News | Miracle baby with heart outside body delivered safely

Miracle baby with heart outside body delivered safely

Baby Vanellope Hope has an extremely rare condition, which had her heart growing on the outside of her body

 WARNING: Viewers may find the following content distressing

 

Her parents, Naomi Findlay, 31, and Dean Wilkins, 43, of Bulwell, Nottinghamshire, were told they were pregnant with Vanellope in June.

Their nine-week scan revealed that their baby’s heart and some of her stomach had begun to grow outside of her body. The rare condition is called ectopia cordis.

She was due to be born Christmas Eve, but her condition meant she had to be born early. A team of 50 staff at Glenfield Hospital, Leicester, helped deliver her.

“At around 50 minutes of age, it was felt that Vanellope was stable enough to be transferred back to the main theatre where she had been born to waiting anaesthetists, congenital heart disease and paediatric surgical teams who began the task of putting her entire heart back in her chest,” said consultant neonatologist,  Jonathan Cusack.

Babies born with ectopia cordis are said to have less than a 10% survival rate.

Dean Wilkins, Vanellope’s father commented: “The moment she was born I realised that we had made the right decision. We know this is going to be a rollercoaster and have started to prepare ourselves for the difficult time ahead, but we needed to give her a chance, and the team here have done that.” 

Related entries

Merry Christmas from Dad.info

Merry Christmas from Dad.info

Christmas is a mixed affair. A general sense of fun coupled with exhaustion as we get closer to the actual date. A nagging sense of having not bought enough...sometimes any....presents. Guilt as we are thanked for presents we didn't know existed. Dreading younger...

How divorcing couples can save thousands this Christmas

How divorcing couples can save thousands this Christmas

Every day at Dad.info we talk with parents who are struggling through costly court hearings. We strongly believe that mediation is a route that can take the conflict out of separation. Hands up who would like £500 towards mediation sessions? Too Late for Court...

Latest entries

Pin It on Pinterest