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[Solved] Coping with a whole host of problems …

 
(@geek84)
Honorable Member Registered

Good Morning
I hope you’re all well and please let me know if this is the wrong forum for posting my question.
I am a male and approaching 50 years of age. I was born with a whole host of problems:

Cervical Myelocele
Meningo Myelocele
Right Convergent Strabismus
Deformity Of Right Foot
Spinal Deformity
Operation for Squint
Occipital Meningocele
Right Hemiparesis
Incoordination of right Hand

I have lived with all this since birth. I have noticed that some of these symptoms have started to increase and would very much like to get in touch with other individuals (for moral support) who have also got some of these problems.
I tried to look online but couldn’t find any relevant groups or online chat groups. Does anybody know of any Facebook groups, meetup groups/events, online groups/chats where I could meet or talk online with other individuals who suffer the same problems?

Thanks in advance for your responses.

Quote
Topic starter Posted : 14/01/2018 3:00 pm
 actd
(@actd)
Illustrious Member

I would have thought your GP would be able to point you in the direction of any online groups that may be around, or possibly an occupational therapist.

ReplyQuote
Posted : 18/01/2018 1:13 am
geek84 and geek84 reacted
(@superprouddad)
Reputable Member Registered

Try searching for those conditions on facebook. I tried only Spinal Stenosis and it comes up with things like:

https://www.facebook.com/groups/StenosisSupportGroup/
https://www.facebook.com/groups/158694254255127/

There are also these on the general web, not sure if they are any good ?

https://www.mdjunction.com/support-groups
https://www.drugs.com/answers/support-group/spinal-stenosis/

Hope you can find some relief and I'm sorry for that, it sounds like you must suffer a fair bit.

ReplyQuote
Posted : 18/01/2018 1:38 am
geek84 and geek84 reacted
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